NANETS provides this resource page as a service to the NET medical community. Given the rapidly changing nature of this public health emergency, new or different information may emerge following the posting of information on this site. We welcome resource tools, new data and relevant information we can share here. Please send resources to This email address is being protected from spambots. You need JavaScript enabled to view it..

Our sincerest thanks to all of the medical professionals on the front lines of this disease. Our NET medical providers and the patients you care for are in our thoughts every day.


COVID-19 resources for patients, families and caregivers


 Resources for NET Medical Providers 

 

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The Panel Discussion on NET Patient Care in the Era of COVID-19 was held Thursday, April 2, 2020, 8:00 - 9:15 pm ET. Discussion focused on key areas of importance to medical professionals and their patients, with recommendations from leading members of the NET medical community. Thank you to our panelists: Pamela L. Kunz, MD, University School of Medicine; Daniel Halperin, MD, University of Texas MD Anderson Cancer Center; James Howe, MD, University of Iowa, Carver College of Medicine; and Emily Bergsland, MD, University of California, San Francisco School of Medicine.

View Panel Discussion

Audio only

 

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Developed by NET specialists, this is the companion document to the April 2 panel discussion among NET providers. This piece is also being published in Pancreas.

Download document


 

Links to COVID-19 Resources for Medical Providers

  

COVID-19 Provider & Practice Information

American Society of Clinical Oncology (ASCO)

National Comprehensive Cancer Network (NCCN)

ASTRO Guidelines for Radiation

Joint GI Society Statement

National Institutes of Health (NIH)

Centers for Disease Control (CDC)

World Health Organization (WHO)

COVID-19 Imaging, Radiology and Nuclear Medicine Treatment Information

Society of Nuclear Medicine and Molecular Imaging (SNMMI)

International Atomic Energy Agency (IAEA)

Society for Interventional Radiology

COVID-19 Surgical Guidelines

American College of Surgeons

Society for Surgical Oncology (SSO)

COVID-19 Guidance for Cancer Researchers

        National Cancer Institute

 

Resources for NET Patients, Families and Caregivers

 

Recording Available: Panel Discussion for Patients, Families and Caregivers

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NANETS hosted a special online program for NET patients, families and caregivers, "COVID-19 Information for Patients and Caregivers" on April 23, 2020.

A panel of NET specialists engaged in an open conversation with NET specialists, and the NET patient community, about the unique treatment decisions NET patients and caregivers face during this COVID-19 crisis. 

View Recording 

 

Companion Guide Available for Download

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We are pleased to provide this general guidance for patients, their families and caregivers during the COVID-19 pandemic. This should not be considered definitive and may vary depending on the clinical situation and prevailing local conditions. As with any medical information, all medical decisions must be made after consultation with your own health care providers.

Download Guide

  


Links to Patient Organizations and Resources

American Multiple Endocrine Neoplasia Support (AMENSupport)

Cancer.Net

The Carcinoid Cancer Foundation

Center to Advance Palliative Care

Healing Net Foundation

Ipsen Somatuline Home Injection Program

Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)

Neuroendocrine Cancer Awareness Network (NCAN)

Neuroendocrine Tumor Research Foundation (NETRF)

NorCal CarciNET

Novartis Sandostatin Home Injection Program

Patient Power

UCSF Meri Center for Education and Palliative Care at Mt Zion

 

Research and Clinical Trials Related to COVID-19

Participate in a Virtual  Research Study on Cancer and COVID-19 at Stanford: Impact of the novel Coronavirus (COVID-19) on Patients with Cancer

ClinicalTrials.gov

 

General Information and Guidelines for COVID-19

Centers for Disease Control (CDC)

Infectious Disease Society of America

National Institutes of Health (NIH)

World Health Organization (WHO)

 

State Guidelines

Find your State Department of Health for information and guidelines specific to your state.

 


Disclaimer

Content posted herein is for informational purposes for health care providers. It does not constitute definitive medical or legal advice nor endorsement of any specific course of diagnosis, treatment of management of COVID-19. Given the rapidly changing nature of this public health emergency, new or different information may emerge following the posting of information on this site. NANETS assumes no responsibility for any injury or damage to persons or property arising out of or related to any use of this information or for any errors or omissions. NANETS provides this information on an “as is” basis, and makes no warranty, express or implied, regarding the information.